Who do I think I am? nd what kind of nerve do I have...?

I have MS. It causes my body and mind to malfunction, if you will. It can be scary when I try to do normal everyday things, like put my make-up on or write a letter, because I can't execute these things any better than an 18 month old child. My hands are shaky or my body is having involuntary movements of something similiar to this situation. Is this problem going to get worse, or will it stabilize for good? What is my life going to be like when I am trapped in this body that I have no control over? And then I am reminded that others have it worse. Like a child with Rett Syndrome. She (rarely male) has something to say but can't say it. Or wants to look at something and can't reach for it, and even if she could her hands wouldn't hold it very well so she could exam it closely. Rett Syndrome is not a mental problem. The brain itself is hunky-dory as far as function, thinking and processing. Imagine you can't tell you mom that you like her dress, or that you want your hair in braids today, or that you're sad and just want to give her a hug. Many of these things can be understood, in general terms anyway, by those who are with her everyday, but this kind of communication leaves much to chance. What if you enjoy dessert but want more whipped cream? Or more pepper on your chicken? How is something so specific communicated? I get so frusterated (as do the people I am trying to communicate with) when I know what I want to say but the words won't come out. How do I tell my daughter to put put her shoes away when all I can do is point at it, and keep pointing until maybe I can get the word 'that' out. Who am I to feel sorry for myself when comparitavely I have it easy? And how can I in good conscience spread MS awareness and hope people will help find a cure for this disease when Retts is something much worse that most people have never heard of?